Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy
Feb 25, 2020
sarepta.com
What is Duchenne? (for ages 4-7)
What is Duchenne? (for ages 4-7)
May 21, 2020
parentprojectmd.org
Tucson child receives first gene therapy treatment for Duchenne muscular dystrophy.
1:42
Tucson child receives first gene therapy treatment for Duchenne muscular dystrophy.
9 months ago
MSNKGUN Tucson, AZ
Duchenne is a rare genetic condition that mostly affects boys. It’s progressive, and raising awareness is so important. Every day counts. We’re still learning what life with Duchenne looks like for Louie and we don’t have all the answers. We hope that by sharing our journey we can help other families get answers sooner than we did. Please share to spread awareness 💛 #duchennemusculardystrophy #duchenne #duchenneawareness #musculardystrophy #timeismuscle #makingmemoriesaccessible | Making Memori
1:00
Duchenne is a rare genetic condition that mostly affects boys. It’s progressive, and raising awareness is so important. Every day counts. We’re still learning what life with Duchenne looks like for Louie and we don’t have all the answers. We hope that by sharing our journey we can help other families get answers sooner than we did. Please share to spread awareness 💛 #duchennemusculardystrophy #duchenne #duchenneawareness #musculardystrophy #timeismuscle #makingmemoriesaccessible | Making Memori
262 views5 months ago
FacebookMaking Memories Accessible
DUCHENNE MUSCULAR DYSTROPHY: WHAT YOU NEED TO KNOW Duchenne isn’t “just” a muscle condition. It’s a life-limiting, genetic disease that slowly steals muscle strength - including the muscles needed to walk, breathe, and protect the heart. 🧬 It mainly affects boys 🦽 Most lose the ability to walk in childhood ❤️ The heart and lungs weaken over time ⏳ There is currently no cure But here’s what else you should know… Kids with Duchenne are funny. Clever. Determined. Dreamers. Gamers. Brothers. Sons.
0:22
DUCHENNE MUSCULAR DYSTROPHY: WHAT YOU NEED TO KNOW Duchenne isn’t “just” a muscle condition. It’s a life-limiting, genetic disease that slowly steals muscle strength - including the muscles needed to walk, breathe, and protect the heart. 🧬 It mainly affects boys 🦽 Most lose the ability to walk in childhood ❤️ The heart and lungs weaken over time ⏳ There is currently no cure But here’s what else you should know… Kids with Duchenne are funny. Clever. Determined. Dreamers. Gamers. Brothers. Sons.
1.3K views2 months ago
FacebookHarrison & Duchenne - Raising Awareness of …
Meet some of the brave children and families living with Duchenne Muscular Dystrophy. Their courage fuels a movement, and their stories ignite a powerful call for change. Together, we can bring hope, and work towards a cure. Every step we take brings us closer to a future where Duchenne is no longer a battle. Let’s unite for a world of possibility! 💙 #SaveOurSons #SOSDuchenneFoundation #EndDuchenne #HopeForACure | Save Our Sons Duchenne Foundation
1:21
Meet some of the brave children and families living with Duchenne Muscular Dystrophy. Their courage fuels a movement, and their stories ignite a powerful call for change. Together, we can bring hope, and work towards a cure. Every step we take brings us closer to a future where Duchenne is no longer a battle. Let’s unite for a world of possibility! 💙 #SaveOurSons #SOSDuchenneFoundation #EndDuchenne #HopeForACure | Save Our Sons Duchenne Foundation
14.5K viewsFeb 3, 2025
FacebookSave Our Sons Duchenne Foundation
The 7th Annual Calves to Cure DMD event took place in Billings, Paul Heaton shares his family's story behind starting the non profit to raise awareness for Duchenne Muscular Dystrophy. | Northern Ag Network
6:28
The 7th Annual Calves to Cure DMD event took place in Billings, Paul Heaton shares his family's story behind starting the non profit to raise awareness for Duchenne Muscular Dystrophy. | Northern Ag Network
478 views7 months ago
FacebookNorthern Ag Network
'Our only chance is research': Calves To Cure raising money for currently incurable disease
Sep 15, 2021
ktvq.com
Calves to Cure helps fund research for Worden boy's rare disease
Sep 19, 2024
ktvq.com
2:02
Why Duchenne Families Are Still Waiting | Walking Strong Foundation
310 views1 month ago
YouTubeWalking Strong
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "👣 Early Signs of Duchenne Muscular Dystrophy (DMD) Duchenne can show up in small ways long before a diagnosis, often in the way a child moves, runs, or even gets up from the floor. Many parents sense something’s different before they have words for it. If you notice any of these signs, it may not mean Duchenne but can mean further testing is worth exploring by having discussions with medical professionals. ⚠️ Movement clues • Not w
1.2K views4 months ago
Instagramharrison_and_duchenne
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Duchenne doesn’t only affect muscles - it can impact bones too. People living with Duchenne Muscular Dystroph are at a much higher risk of developing osteoporosis. This happens for a few reasons: reduced mobility weakens bones over time, and long-term steroid use - while helpful in slowing muscle decline - can also lower bone density. Fragile bones mean a higher risk of fractures, which can lead to pain, hospital stays, loss of mobility, and setbacks that are hard to recover from. So bone health
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